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A “Spoonie” is a term referring to the story by patient advocate, Christine Miserandino who, when explaining her journey as a person with chronic illness (or disability), used a set of spoons to help her friend understand the struggle. Because her description is an article that is copy-written (©), I’m not going to post it here but want to give her due credit so you can read all about it at her website: http://butyoudontlooksick.com.
Another patient advocate article that helps to explain the “Spoonie” analogy: https://www.patientsrising.org/what-is-spoonie/
I was looking for a way to provide links & files of various articles (some self-published) and further details, in addition to my YouTube channel, “The Karah Life – Ostomy Plus”, so I’m going to reserve this page for pdf files & links for anyone who needs more info on ostomies and autoimmune diseases 💜.
CONDITIONS
ARTHRITIS:
- Rheumatoid Arthritis (RA):
Arthritis Foundation - Osteoarthritis (OA):
Arthritis Foundation - Ankylosing Spondylitis (AS):
Spondylitis Association of America
GASTROENTEROLOGY:
- IBD (Inflammatory Bowel Disease:
Crohn’s & Colitis Foundation
- Ostomy: (info will be primarily ileostomy & colostomy but urostomates may find helpful too)
United Ostomy Associations of America
WOMEN’S REPRODUCTIVE CONDITIONS:
- Endometriosis:
John’s Hopkins Medicine
Journal of a Warrior's Journey 